Patient and Caregiver Resources
Understanding treatment with DARZALEX FASPRO®
Use this comprehensive resource to learn more about the treatment experience with DARZALEX FASPRO®.
Questions to ask your healthcare team
It’s important to have open, honest discussions with your healthcare team. They want to answer your questions to help you make informed decisions.
Generate a list of questions for your doctor with our Personalized Conversation Starter.
Keep track of your dosing schedule and plan with your doctor for your next visit with our treatment calendar.
Multiple myeloma education and support groups
Living with multiple myeloma, and caring for someone who has it, requires physical and emotional support. Here is a short list of independent organizations that provide education and support groups that may be able to help. For additional organizations not listed here, use the Janssen Advocacy Connector.
American Cancer Society
The American Cancer Society offers information, day-to-day help, and emotional support to cancer patients as well as their family and friends. From free lodging and transportation to help making decisions about your care, they offer programs, services, and resources that can help you on your journey.
CancerCare.org offers patients and caregivers counseling, support groups, educational workshops, publications, financial assistance, and community programs.
Cancer Support Community
Cancer Support Community offers social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone.
International Myeloma Foundation
The International Myeloma Foundation provides information online and by phone. They offer patient and caregiver education materials, and conduct patient and family seminars and regional community workshops. They can also help you find support groups.
Leukemia and Lymphoma Society
The Leukemia and Lymphoma Society offers information specialists, peer-to-peer support, and online chats for both patients and caregivers. They also produce the “Bloodline with LLS” podcast for cancer survivors and offer financial guidance and support.
Multiple Myeloma Research Foundation
The Multiple Myeloma Research Foundation offers patient education programs and a nurse support line. They can also help you find a treatment center, clinical trials, support groups, and financial assistance programs.
The Myeloma Beacon provides news, resources, and online forums for patients, medical professionals, and others interested in multiple myeloma.
The Myeloma Crowd aggregates and shares the latest research and provides social media groups where patients can exchange information. They also host live patient meetings and seminars, especially for relapsed and high-risk patients.
Patient Empowerment Network
Patient Empowerment Network (PEN) equips patients and caregivers with the tools and resources needed to understand their cancer diagnosis and take an active role in their treatment journey.
Patient Power maintains a rich library of cancer information videos for patients and professionals alike. They can also help you locate financial, insurance, and family resources.
Additional resources from Janssen
Advocacy Connector is a Janssen-sponsored resource that connects patients and caregivers to national and state-specific advocacy groups that offer resources that may be relevant to your needs.