Patient and caregiver resources

Family Discussion Guide

If you’re having difficulty talking with family and friends about how multiple myeloma will affect your life and theirs, use our Interactive Family Discussion Guide to create a personalized list of topics and questions to discuss.

Open Guide

Questions to ask your healthcare team
It’s important to have open, honest discussions with your healthcare team. They want to answer your questions to help you make informed decisions.

Generate a list of questions for your doctor with our Personalized Conversation Starter.

Elliot,
DARZALEX® patient, on the value of support

“I see a counselor and attend the multiple myeloma support group meetings. I also led a multiple myeloma support group for 7 years. It’s important for education and to keep up to date on what is coming down the pipeline.”

Watch Patients’ Stories

Multiple myeloma education and support groups

Living with multiple myeloma, and caring for someone who has it, requires physical and emotional support. Here is a short list of organizations that provide education and support groups that may be able to help. For additional organizations not listed here, use the Janssen Advocacy Connector.

The American Cancer Society offers information, day-to-day help, and emotional support to cancer patients as well as their family and friends. From free lodging and transportation to help making decisions about your care, they offer programs, services, and resources that can help you on your journey.

CancerCare.org offers patients and caregivers counseling, support groups, educational workshops, publications, financial assistance, and community programs.

Cancer Support Community offers social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone.

The International Myeloma Foundation provides information online and by phone. They offer patient and caregiver education materials, and conduct patient and family seminars and regional community workshops. They can also help you find support groups.

The Leukemia and Lymphoma Society offers information specialists, peer-to-peer support, and online chats for both patients and caregivers. They also produce the “Bloodline with LLS” podcast for cancer survivors and offer financial guidance and support.

The Multiple Myeloma Research Foundation offers patient education programs and a nurse support line. They can also help you find a treatment center, clinical trials, support groups, and financial assistance programs.

The Myeloma Beacon provides news, resources, and online forums for patients, medical professionals, and others interested in multiple myeloma.

The Myeloma Crowd aggregates and shares the latest research and provides social media groups where patients can exchange information. They also host live patient meetings and seminars, especially for relapsed and high-risk patients.

Patient Power maintains a rich library of cancer information videos for patients and professionals alike. They can also help you locate financial, insurance and family resources.

For Further Information

Cancer.com was created by Janssen Oncology, in collaboration with the American Cancer Society, the Cancer Support Community, and CancerCare, and provides patients and caregivers with up-to-date cancer resources and information tailored to their needs.

Advocacy Connector is a Janssen-sponsored resource that connects patients and caregivers to national and state-specific advocacy groups that offer resources that may be relevant to your needs.
Access Advocacy Connector